KVALITET OBRAZOVANJA I KVALITET ŽIVOTA DECE SA POREMEĆAJIMA SENZORNE INTEGRACIJE I ČLANOVA NJIHOVE PORODICE U VREME PANDEMIJE COVID-19
Stručni naučni rad
Apstrakt
Pandemija COVID-19 u mnogome je promenila život porodica dece sa potrebom za posebnom podrškom. Cilj ovog istraživanja je da predstavi vezu između kvaliteta obrazovanja i kvaliteta života dece sa poremećajima senzorne integracije sa posebnim fokusom na kvalitet života članova njihove porodice u vreme pandemije COVID-19. Pregled literature obavljen je preko pretraživača Google Scholar Advanced Search i Konzorcijuma biblioteka Srbije za objedinjenu nabavku - KoBSON. Rezultati ove studije pokazuju da je zatvaranje škola predstavljalo okidač za remisiju ne samo u pogledu kognitivnog i govorno-jezičkog razvoja, već i da su ova deca doživela remisiju u motoričkom domenu dečjeg razvoja usled nedostatka fizičke aktivnosti. Takođe rezultati pokazuju da su ova deca pretrpela veliku štetu na planu socijalizacije usled prinude na socijalnu izolaciju. Roditelji ističu da obrazovanje na daljinu negativno utiče na funkcionalnost porodice, da nedostaje podrška škole, da je komunikacija sa nastavnicima ograničena i da je oslanjanje na roditelje tokom sprovođenja učenja na daljinu dovelo do visokog nivoa stresa, anksioznosti i sukoba u porodici. Istraživanja pokazuju i da su roditelji dece u vreme pandemije COVID-19 uložili dodatne napore kako bi sebi pomogli da prevaziđu izazove u ovoj vanrednoj situaciji. Oni su nastojali da iščitavaju različite blogove i internet sajtove u cilju dobijanja informacija i saveta o invaliditetu svog deteta. Ova studija je pokazala negativan uticaj pandemije COVID-19 na kvalitet života dece sa poremećajima senzorne integracije i članova njihove porodice koji su preuzeli puni nadzor u nedostatku usluga podrške usmerenih na njihovu decu. Iako su postojale mogućnosti za nastavak obrazovanja u kućnim uslovima putem digitalnog sadržaja, to nije bilo dovoljno da se zadovolje potrebe niti da se obezbedi briga koju ova deca i porodice zaslužuju.
Reference
Brooks, S.K., Webster, R.K., Smith, L.E., Woodland, L., Wessely, S., Greenberg, N., & Rubin, G.J. (2020). The psychological impact of quarantine and how to reduce it: Rapid review of the evidence. Lancet, 395, 912-920.
CDC, 2019. Data and statistics on children's mental health | CDC. Centers Dis. Control Prevent. https://www.cdc.gov/childrensmentalhealth/data.html
Chen, S., Chen, S., Li, X., & Ren, J. (2020). Mental Health of Parents of Special Needs Children in China during the COVID-19 Pandemic. International Journal of Environmental Research and Public Health, 17, 9519.
Colizzi, M., Sironi, E., Antonini, F., Ciceri, M., Bovo, C., & Zoccante, L. (2020). Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey. Brain Sciences, 10, 341.
Courtenay, K., & Perera, B. (2020). COVID-19 and people with intellectual disability: Impacts of a pandemic. Irish Journal of Psychological Medicine, 37, 231-236.
Crawford, J., Butler-Henderson, K., Rudolph, J., & Glowatz, M. (2020). COVID-19: 20 countries' higher education intra-period digital pedagogy responses. Journal of Applied Teaching and Learning, 3(1), 1-20.
Dong, C., Cao, S., & Li, H. (2020). Young children’s online learning during COVID-19 pandemic: Chinese parents’ beliefs and attitudes. Child Youth Serv Reviews, 118, 105440.
Hauser-Cram, P., Warfield, M., Shonkoff, J., Krauss, M., Sayer, A., Upshur, C., & Hodapp, R. (2001). Children with Disabilities: A Longitudinal Study of Child Development and Parent Well-Being. Monographs of the Society for Research Child Development, 66, i-viii.
Hsiao, Y. (2017). Parental stress families of children with disabilities. Intervention in School and Clinic, 53(4), 201-205.
Ilić-Savić, I., Petrović-Lazić, M., & Resimić, R. (2021). Sensory integration and its significance for functioning and developing children's speech. Medicinski Pregled, 74(5-6), 205-210.
Kaur, G. (2020). Digital Life: Boon or bane in the teaching sector on COVID-19. CLIO an Annual Interdisciplinary Journal of History, 6(6), 416-427.
Kucharewucz, J., & Wieteska, A. (2019). The role of social support in achieving mental well-being for parents of disabled children. Organic Management Services, 141, 231-238.
Lee, S.J., Ward, K.P., & Olivia, C.D. (2021). Downing, K.M. Parenting activities and the transition to home-based education during the COVID-19 pandemic. Children an Youth Services Review, 122, 105585.
Liu, X., Kakade, M., Fuller, C.J., Fan, B., Fang, Y., Kong, J., Guan, Z., & Wu, P. (2012). Depression after exposure to stressful events: Lessons learned from the severe acute respiratory syndrome epidemic. Comprehensive Psychiatry, 53, 15-23.
Mcstay, R., Trembath, D., & Dissanayake, C. (2018). Stress and family’s quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44, 3101-3118.
Narzisi, A. (2020). Handle the Autism Spectrum Condition During Coronavirus (COVID-19) Stay At Home Period: Ten Tips for Helping Parents and Caregivers of Young Children. Brain Sciences, 10(4), 207.
Petrović-Lazić, M. (2022). Poremećaji govora kod dece sa senzornim oštećenjima. Beograd: Nova poetika.
Rababah, A., Alqaryouti, I., Alsartawi, Z., Khlaifat, D., & Awamleh, A. (2021). Exploring Feelings of Worry and Sources of Stress during COVID-19 Pandemic among Parents of Children with Disability: A Sample from Arab Countries Faisal Abdelfattah. Education Sciences, 11, 216.
Ren, J., Li, X., Chen, S., Chen, S., & Nie, Y. (2020). The Influence of Factors Such as Parenting Stress and Social Support on the State Anxiety in Parents of Special Needs Children During the COVID-19 Epidemic. Frontiers in Psychology, 11, 565393.
Tal-Saban, M., Ornoy, A., & Parush, S. (2014). Young adults with developmental coordination disorder: A longitudinal study. American Journal of Occupational Therapy, 68(3), 307-316.
Thorell, L.B., Skoglund, C., de la Peña, A.G., Baeyens, D., Fuermaier, A.B., Groom, M.J., Mammarella, I.C., Van der Oord, S., van den Hoofdakker, B.J., Luman, M.. et al. (2021). Parental experiences of homeschooling during the COVID-19 pandemic: Differences between seven European countries and between children with and without mental health conditions. European Child & Adolescent Psychiatry, 31(4), 649-661.
Van Esch, L., O’Nions, L., Hannes, K., Ceulemans, E., Van Leeuwen, K., & Noens, I. (2018). Parenting early adolescents with autism spectrum disorder before and after transition to secondary school. Advances in Neurodevelopmental Disorders, 2, 179-189.
Woodman, A.C., Mawdsley, H.P., & Hauser-Cram, P. (2015). Parenting stress and child behavior problems within families of children with developmental disabilities: Transactional relations across 15 years. Research in Developmental Disabilities, 36C, 264-276.
Zablotsky, B., Bradshow, C., & Stuart, E. (2013). The association between mental, stress, and coping supports in mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 34, 1380-1393.